Issues Regarding Confidentiality of Data in the Cooperative Health Statistics Systems

By Rice, Dorothy P.

Book Id: WPLBN0000156758
Format Type: PDF eBook:
File Size: 3.93 MB
Reproduction Date: 2005

Title:	Issues Regarding Confidentiality of Data in the Cooperative Health Statistics Systems
Author:	Rice, Dorothy P.
Volume:
Language:	English
Subject:	Health., Medical research, Medical reports
Collections:	Medical Library Collection
Historic Publication Date:
Publisher:	Centers for Disease Control and Prevention


Citation APA MLA Chicago P. Ric, B. D. (n.d.). Issues Regarding Confidentiality of Data in the Cooperative Health Statistics Systems. Retrieved from http://gutenberg.cc/

Excerpt
Initial articles of agreement set forth by the National Center for Health Statistics under contract HRA 106-74-25 charged the contractor with undertaking activities intended to define and outline a program of research, development, testing, and action to resolve the major issues regarding confidentiality of data within an emerging new program—the Cooperative Health Statistics System. Specifications provided that the project should (1) identify the nature and character of major issues having an impact on confidentiality in the Cooperative Health Statistics System; (2) delineate programs or projects directed toward the resolution of these major issues including evaluation of existing methods and practices, devising new practices that might resolve or lessen difficulties in the field, and outlining those areas in which further research or development appears necessary; (3) suggest directions for training and guidance in making either policy or operating decisions; and (4) explore the possibility that a portion of the overall confidentiality problem in the Cooperative Health Statistics System can be bypassed rather than directly confronted by using techniques and procedures that yield adequate information while avoiding the risk of disclosing privileged data. Since initiation of the project, various events, including passage of several significant laws, persuaded the contractor (with encouragement from the Government) to expand certain aspects of the original investigation to address the central objective more fully.

Table of Contents
CONTENTS Preface . . .... .. .. ... ... ... ... .. .. .. ... .. ... ... ... .. .. ... ... .. ... . .... .. .. ... .. ... . .... .. ... . ... .. .... . .. ... .. ... ... .. .. .. .. .. .. ........................... Chapter I Introduction .. .. ... . .... .. ... .. ... .. ... .. .. .. . ... .. .. .. .. . .... . ... .. .. ... ... .. .. .... . ... . .... . .... .. .... . .. ... .. .. .. .... .. .. ... ... . .................... The Conditioning Environment ... ... ... .. .. ... .. ... . .... .. ... .. ... . .. ... ... .... . .. .. ... .. ... ... .. .. .... .. .. . .. ..... ... ... .. .. ... ... .. .. A Central Problem ... . .... .. ... . .... .. .. ... ... .. .. ... . .. .. .. .... . ... .. .. .. ... ... ... .. .. ... ... .. . .... . ... ... .. .. .... .. .. .. .. ... ... .. .. . . .. ..... Perspectives ... .. ... ... .... . ... .. ... .. ... .. .... . .. ... ... .. ... .. .. .... .. ... . ... ... .. .. .. .. . ... .. .. .. .. .... .. ... .. . .. .. .. ... .... . ... ................. Structure of the Report . . .... .. ... . .... .. .. ... ... .. . ... ... ... .. .. .. ... .... .. .. ... . .... .. .. .. .. .... .. .. . . .. ... ... .. ... ... .. .. ... ... .. .. ... .. Chapter II Background .... . ... ... ... . .... . .... .. ... . .... .. ... .. . .... ... .. .. .... .. .. .. ... .. .... . .. ... ... .. . .. .. .. .... . ... ... . .. .. .. .. .. .. .. ... ..................... Wealth of Activity .. ... . .... .. ... .. .. .. ... .. ... ... ... .. . ... ... ... . .... .. ... .. ... .. ... .. ... .. .... .. . ... .. .. .. .. .. . ... .. .. .. . ... .. .... .. .. ....... Immediate Stage Setting .. ... .. ... .. ... .. ... ... ... . ... .. .... . . .. .. .. .. . . .. .. .. .... . ... . ... .... . ... .. .. .... .. .. .. .. .. .. . ... ... ... .. .. ... ... . Chapter III Summary of Conclusions mdRecommendations .. .. ... .. .. ... .. ... .. .. .. . . .... .. .. .. . ... .. .. .. .... .. .. .. .. .. . .. ... .. .... .. .. .. .. .. Chapter IV Ethical and Humanistic Considerations ... .. .... . .. ... .. ... ... .. . .. .. . ... ... . ... ... .. ... ... .. ... . .... . ... .. ... . .. .. .. .. .. .. .. ... . .. .. .... Interaction of Disciplines ... .. .. .. .. ... .. ... ... ... . ... .. .... .. . ... ... .. .... . .. .. ... .... .. .. .. .. ... . .... .. .. .. .... .. ... . .. .. .... .. .. .. .. .. .. Personal Rights .. .. ... .. .... . .. ... ... .. .. ... .. ... .. .... . .... . .... . ..... ... ... .. .. ... .. .. .. .. . ... .. .... .. . ... .. .... .... . .. ... .. .. .. .. .. .......... Informed Consent .. ... .. .. .. .... .. ... . .... .... .. . ... .. . .. . ... ... .. ... .. .... . ... . .... .. ... .. ... ... .. .. .. ... . .. .. .. .. .. .... .. .. .. .... .. . ... ..... Inconsiderate Inquiry ... .. .. .. .. .. .. .. ... . .. .. .. .. ... ... .. .. ... .. ... ... .. .. .. . .. ... .. ... . .... . .. .. . ... ... . ... .. .... . . .... ... .. ... .. .. .. .... .. Chapter V Political and Economic Factors .. ... .. .... .. .. .. .... . .... . .. ... .... .. ... . ... ... .. ... . .... .. .. .... .. . .. ... ... .. ... .. .. .. .. .. .. .. .. .. .. .. .. .... Intent of the Chapter . ... .. .... . .. ... ... ... .. . .... .. .. ... . ... ... ... .. . ... . .. ... ... .. .. .. .... . ... .. .. .... .. .. .. .. ... . .. .. .. .. .... .. .. .. .... ... Political and Jurisdictional Concerns . .. .. .... . ... .. ... .. .. .. . ... .. .... . .. ... .. ... . .... .. ... .. ... . ... .. .. ... ... .. .. ... ... .. ... .. .. ... . Interaction of Politicaf and Economic Concerns . .. ... . .... .. ... . .. .... .. ... . .. .... .. . .. .. .. ... .. .. .. .. .. .. .. .. .. .. .. .. .... .. .. Chapter VI Two Classes of Data and Two Pu~oses .... . .... .. ... . .. .. . ... ... ... . .. ... .. .... .... .. ... .. .. ... .. ... . .... . ... .. .. .. .. .... .. ... .. .. ... ... Distinguishing Features .. .. ... .. ... . ... ... ... .. .... .